Tag: POTS

  • Radiation

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    My goodness, it’s been a minute — four months, actually! Despite that gap, it’s important to me to keep documenting my cancer experience. So here’s what happened after chemo. Consultation Getting set up for radiation is a multi-step process. First is the initial consultation, where the doctor walks you through your options and you decide…

  • Chemotherapy: Round 4, Day 15 — Final Round!

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    Chemotherapy round 4 was a little less tolerable than rounds 2 or 3 but still not too bad. The whole thing took an hour longer than usual again because they were quite busy for some reason. It took about four hours instead of three. My husband ended up in the waiting room instead of sitting…

  • Chemotherapy: Round 3, Day 17

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    Chemotherapy round 3 was the most tolerable yet. The infusion itself was largely uneventful, though it wouldn’t generally be my choice of activity for the day after Christmas. And as it was the day after Christmas and the oncologist’s office had been closed the previous two days, it was quite busy. I’ve never seen it…

  • Chemotherapy: Round 1, Day 3

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    Chemo steroids are keeping me awake in the middle of the night, so what the hell? Let’s try to write an update. 😆 I have my OmmWriter music on in the background via YouTube Music. Anyone familiar with OmmWriter? It’s a distraction-free writing program I used a bunch back in the day. Steroids Anyway, yes.…

  • I Cut Off My Hair and Finally Removed My Surgical Glue (With Photos)

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    Today I did something I do infrequently because it takes so much energy and causes me pain — I showered! But before that, I buzzed my hair off. Hair What began as a casual consideration became almost a compulsion. Get rid of my hair before chemo has a chance. “You want to take my hair?…

  • HER2 Status, Surgical Follow-Up and Heart Rate Update

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    The biggest news of the day is perhaps that the results of the reevaluation of my HER2 status (the HER2 FISH test) came in today and nothing has changed! I’m still considered HER2 negative, which is a relief. Also today I had a follow-up appointment with my surgeon. She says I’m healing well! I do…

  • Here’s The Blog!

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    Here’s the blog where I’ll be trying to document my cancer journey for myself and the people who care about me. For now at least, it’s just a simple WordPress.com site. I could have built it myself and normally I would have, but this will be overall less work, which will be important if cancer…

  • Cancer with ME/CFS and POTS: The Search for Relevant Information

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    You know what there’s really very little of on the internet? Info about people with ME/CFS and POTS who also happen to have cancer. Which means I’m left to wonder about things like whether my cancer treatment will leave my other illnesses permanently worse, etc. I think with most resources, cancer is assumed to be…